Palliative Care Information for Professionals & Consumers

Consumers:

What is Palliative Care?

http://www.getpalliativecare.org/whatis

Is Palliative Care right for you?

http://www.getpalliativecare.org/rightforyou

How to find a Palliative Care Provider.

http://www.getpalliativecare.org/howtoget

http://www.palliativedoctors.org/ 

What are Advanced Directives?

http://caringinfo.org/i4a/pages/index.cfm?pageid=3285

How do I get an Advanced Directive?

http://caringinfo.org/i4a/pages/index.cfm?pageid=3289

 

Clinicians: 

Please take a minute to complete the Palliative Care Survey by "Clicking here".

Building a Palliative Care Program

http://www.capc.org/building-a-hospital-based-palliative-care-program

http://www.dartmouthatlas.org   Dartmouth Atlas: creation of customized reports looking at geographic differences in end-of-life care costs and utilization (US).

Quality resources- Guidelines, Standards, Measures

http://www.aahpm.org/Practice/Quality/guidelines.html
http://www.capc.org/tools-for-palliative-care-programs/national-guidelines/primary-palliative-care-trigger-criteria-capc-consensus.pdf

http://www.capc.org/support-from-capc/capc_publications/nqf-crosswalk.pdf

http://www.nationalconsensusproject.org/

http://www.capc.org/support-from-capc/capc_publications/JCAHO-crosswalk-new.pdf

http://www.capc.org/support-from-capc/capc_publications/pc-medicare.pdf

www.hospicecare.com/

 www.nhpco.org/

www.promotingexcellence.org

Clinical Practice

www.epec.net   EPEC is a training program designed to train physicians on the essential clinical competencies required to provide quality end-of-life care.

www.eperc.mcw.edu    End-of-Life Physician Education Resource Center:  is a repository for high-quality, peer-reviewed educational materials and information about end-of-life issues.

http://www.aacn.nche.edu/elnec/  End of Life Nursing Education Consortium (ELNEC): ELNEC is a national nursing education initiative to improve palliative care.

http://www.mountsinai.org/Patient%20Care/Service%20Areas/Palliative%20Care  Mount Sinai Palliative Care Center:

http://www.aahpm.org/Practice/default/practice.html

www.hospiceworld.org

www.abcd-caring.org   Americans for Better Care of the Dying 

depts.washington.edu/pallcare/    The Center for Palliative Care Education

www.dyingwell.org   Dr. Ira Byock is a long time palliative care physician and his website includes recommended books, articles, and websites; a discussion guide, The Grief Series , by Cathy Weber; and Landmarks and Developmental Tasks for the End of Life.

www.mountida.edu/sp.cfm?pageid=307  National Center for Death Education:

www.careofdying.org. A coalition of Catholic health care providers and organizations dedicated to improving the system of palliative care

Competencies and Fellowships

http://www.aahpm.org/Train/default/career.html

http://www.hpna.org/

www.aahpm.org/fellowship/directory.html

Certification-

http://www.aahpm.org/certification/default/index.html   American Academy Hospice & Palliative Medicine

www.abhpm.org/   American Board of Hospice and Palliative Medicine 

www.hpna.org/    Hospice and Palliative Nurses Association oldest professional nursing organization dedicated to promoting excellence in hospice and palliative nursing care.

Pediatric Palliative Care

http://www.capc.org/palliative-care-across-the-continuum/pediatric-palliative-care/

Palliative Care in the ICU

http://www.capc.org/ipal-icu

Social Work in Hospice and Palliative Care Network:

http://www.swhpn.org/  Links to information, education, training, and research for social workers

Palliative and Hospice Forum/ Blogs/ Journals

http://www.pallimed.org/

http://www.capc.org/forums/

http://www.geripal.org/

www.edc.org/lastacts/

www.liebertpub.com/JPM Journal of Palliative Medicine

http://www.elsevier.com/wps/find/journaldescription.cws_home/505775/description#description   Journal of Pain and Symptom Management: Official Journal of the American Academy of Hospice and Palliative Medicine, the National Hospice and Palliative Care Organization, and the U.S. Cancer Pain Relief Committee.

http://www.jhpn.com/   The Journal of Hospice and Palliative Nursing