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MHPCA is pleased to provide information and resources for health care professional on subjects related to hospice and palliative care.

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Discipline Specific Resources

 

Hospice Licensure

Any person or other entity desiring to provide hospice care or hold himself out as a hospice must be licensed by the Missouri Department of Health and Senior Services. Any person or entity which exacts no charge shall be exempt from licensure. For more information click Hospice Licensure Statute.

Missouri Department of Health and Senior Services
Hospice Advisory Council

Missouri licensure established a Hospice Advisory Council which shall guide, advise and make recommendations to the Department of Health and Senior Services (DHSS). The council consist of five members who have experience with hospice. Members of the council are appointed by the director of the DHSS.

Missouri Hospice Licensure and Medicare Oversight

Missouri Department of Health and Senior Services
Home Care and Rehabilitative Standards
PO Box 570
Jefferson City, MO
Phone: 573-751-6336
Home Health/Hospice Hotline: 800-392-0210 (to be used for filing complaints)

Home Care and Rehabilitative Newsletter
"Bureau Talk"

Home Care and Rehabilitative Standards safeguards services provided through certified and/or licensed home health agencies, hospice programs, comprehensive outpatient rehabilitation facilities (CORF) and providers of outpatient physical therapy or outpatient speech pathology (OPT/OSP) by:

  • Conducting on-site inspections of these agencies for Medicare certification and/or state licensure compliance. This process includes issuing state licenses for the operation of home health and hospice agencies.
  • Investigating allegations of inappropriate patient care.
  • Maintaining a complaint hotline for the purpose of receiving questions about home health agencies and/or hospices or for patients to lodge complaints concerning their agency or quality of care provided.

Resources

Hospice Medicare Certification and State Licensure (Certification) Forms and Resources
Federal Interpretive Guidelines - Hospice (State Operation Manual - Appendix M)
Missouri Licensure Spiritual Counselor Defined
19 CSR 30-35.010 - 30-35.030 Hospice Program Operations (state)
HCFA Guidelines for Hospice Care in SNF's
FAQ About Inpatient Facilities

Palliative Care Professionals

Articles
Making the Case for Hospital Based Palliative Care
Measuring Quality and Impact of Palliative Care Programs
New Analysis Show Hospitals Continue to Implement Palliative Care Programs at Rapid Pace

Websites
The Center to Advance Palliative Care (CAPC) provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings. CAPC is a national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness. Direction and technical assistance are provided by Mount Sinai School of Medicine. www.capc.org

The National Palliative Care Research Center (NPCRC) is committed to stimulating, developing, and funding research directed at improving care for seriously ill patients and their families. www.npcrc.org

Epidemiology of Dying and End-of-Life Experience (EDELE) This online, searchable catalogue helps you quickly find public data about decedents and care at the end of life. www.edeledata.org Committee

Hospice and Palliative Care Nurses

The Hospice Nurse Committee was established to provide valuable input to MHPCA in the development of educational and networking opportunities for nurses. The Committee has prepared the following information as a resource. For a list of committee members click: Committee

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MHPCA Educational Opportunities
Hospice and Palliative Nurses Association is the nation's largest and oldest professional nursing organization dedicated to promoting excellence in pain management and end-of-life care.
National Board for Certification of Hospice and Palliative Nurses (NBCHPN®) is to promote delivery of comprehensive palliative nursing care through the certification of qualified hospice and palliative nurses.
National Council of Hospice Professionals
NCHPP is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care. Committee

Hospice and Palliative Care Chaplains

Hospice and Palliative Care Chaplains Committee a newly formed committee of MHPCA whose purpose is to identify and develop educational opportunities than enhance professional development of hospice and palliative care chaplains/spiritual care counselors; create an environment for state and regional fellowship and collegial bond among hospice and palliative care chaplains/spiritual care counselors that supports one another; and advocate for spiritual care needs of hospice and palliative care patients and their families. For a list of committee members click: Committee

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MHPCA Educational Opportunities
Missouri Hospice Licensure Spiritual Counselor Defined
Frequently Asked Question about CPE
National Council of Hospice Professionals
NCHPP is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care. Committee
Spiritual Thread - By Bob Reagan
Spritual Thread - Charlie Shurtz

 

Hospice and Palliative Care Social Workers

MHPCA Social Work Committee, the first discipline specific committee, has a long history of providing guidance to the association in its development of educational, resource and networking opportunities. Click to see Committee Member Roster.

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MHPCA Educational Opportunities
Hospice Social Work Core Curriculum
National Council of Hospice Professionals
NCHPP is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care.is a widely respected professional organization that effectively balances our deep commitment to advocacy and empowerment of our members and those they serve while maintaining the highest professional standards.
National Association of Social Workers - Missouri Chapter

Hospice and Palliative Care Physicians

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MHPCA Educational Opportunities
Palliative Care at Sea Conference
National Council of Hospice Professionals is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care.

The American Academy of Hospice and Palliative Medicine (AAHPM) is an organization of physicians and other medical professionals dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy.

Hospice Volunteer Coordinators

Hospice Volunteer Coordinator Committee working in collaboration with MHPCA strengthen educational and networking opportunities for Hospice Volunteer Coordinators. Click to identify list of committee members. National Council of Hospice Professionals
NCHPP is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care.
Independent Sector Report Dollar Value of Volunteers
The estimated dollar value of a volunteer's time is $21.79 per hour for 2012, according to the Independent Sector, a nonpartisan coalition of charities, foundations and corporate giving programs. Committee
MHPCA Educational Opportunities
Point of Life Foundation Calculating the Impact of Volunteers

End of Life Dieticians and Nutritionists

National Council of Hospice Professionals
NCHPP is an interdisciplinary-focused and discipline specific forum supporting hospice and palliative care professionals and volunteers through the provision of resources, education, and networking opportunities. Fifteen discipline-specific NCHPP sections collaborate to enhance the field of end-of-life care, which encompasses palliative, hospice, and bereavement care. NCHPP's primary purpose is to model and enhance interdisciplinary approaches to end-of-life care.

Facts and Figures

Patients and Programs
2011 Department of Health and Senior Services (DHSS) Hospice Statistical Report findings:

  • 34,171 hospice patients were served in Missouri
  • DHSS reports 103 licensed hospice programs in Missouri
  • Hospice volunteers contributed 231,942 hours
  • Average length of enrollment in hospice care was 79 days; median length of service was 31 days; 28% of hospice patients has length of stay 7 days or less; 12% of hospice patients has length of stay over 6 months
  • Hospice admissions at home were 50%, Nursing Home 39%
  • Hospice Patients by diagnosis 34% cancer; 12% Heart; 13% dementia; 15% general debility/failure to thrive; 9% lung
  • Residence at time of death: 45% at home; 41% in nursing home; 3% in hospital; 9% hospice inpatient facility; 0% residential care facility

 

Professional Resources

Find Missouri End-of-Life Data at www.edeledata.org
The Carolinas Center for Hospice and End of Life and NHPCO has developed a website www.edeledata.org to assist you in accessing national, statewide, and local data on deaths and end-of-life experience. Use these data for planning, reporting, advoccy and more. The EDELE site is an online, searchable catalogue of public data. Missouri currently has fifty-one records across seventeen main website.

American Academy of Hospice and Palliative Medicine Aging with Dignity - (formerly the Academy of Hospice Physicians) is an international organization of physicians dedicated to the advancement of hospice and palliative medicine.

Aging with Dignity - National non-profit organization that promotes human dignity as America ages, with emphasis on improved care for those near the end of life. Distributes Five Wishes, an easy to use advance directive that over 1 million American families have used to discuss how they want to be treated during times of serious illness.

Americans for Better Care of the Dying - Dedicated to social, professional, and policy reform to improve care for patients with serious illness and their families.

Growth House - Search engine offers access to the net's most comprehensive collection of reviewed resources for end-of-life care. Inter-Institutional Collaborating Network on End-of-Life Care (IICN) links health care organizations through a shared network.

Partnership for Caring: America's Voices for the Dying - National non-profit organization devoted to raising consumer expectations and demand for excellent end-of-life care. Provides a wide range of resources and information about end-of-life care.

Project on Death in America - PDIA's mission is to understand and transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities, and the arts, and to foster innovations in the provision of care, public education, professional education, and public policy.

Hospice Organizations

National Hospice and Palliative Care Organization - The largest nonprofit membership organization representing US hospice and palliative care programs and professionals. Develops public and professional educational programs and materials; convenes meetings and symposia on emerging issues; provides technical informational resources to members; conducts research; monitors congressional and regulatory activities; and works closely with other organizations interested in end-of-life care.

Hospice Association of America - is a national organization representing hospice programs and an affiliate of the National Association for Home Care (NAHC).

Hospice and Palliative Nurses Association - is a national organization representing hospice nurses.

Hospice Foundation of America - promotes the hospice concept of care through education, such as their annual national bereavement teleconference.

Pain Management

American Pain Society - is a multidisciplinary educational and scientific organization dedicated to serving people in pain.

Worldwide Congress on Pain - is sponsored by the Dannemiller Memorial Educational Foundation. This site has information on pain control for both the professional and the consumer, including a library of articles and abstracts.

Missouri Pain Initiative - is dedicated to improving the lives of Missourians in pain. Our mission is to improve the quality of life of people with pain by raising public awareness, promoting self-advocacy and provider practice improvement, and working to remove barriers and increase access to effective pain management.

Grief Support

GriefNet - is a system of resources related to death, dying, and bereavement.

Hospice Hugs - Service for Bereavement Coordinators

Federal

CMS - is the official site of the U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services (CMS), which is the Federal agency overseeing the Medicare and Medicaid programs.

Medicare Hospice Benefits - is an educational brochure that describes Medicare services provided by hospice, published by the Centers for Medicare and Medicaid Services (CMS). (Also available: Spanish version of Hospice Benefits Brochure.)

JCAHO - Joint Commission on Accreditation for Health Care Organizations accredits hospice programs.

Other

Brain Injury Association